Running in the yard, going dirty and laughing cheerfully with friends and adults will make children happy and enjoy their childhood. When a happy hue shines on the child’s face, this certainly makes the mother happy. Why not, children are entrusted by the Power that we must always protect and care for so that they feel safe, comfortable and protected.
For this reason, seeing the happiness radiating from the child’s face seems to be a strength for us. So it is not surprising, if many mothers and parents will do everything they can to make the baby we care for can be happy and enjoy his life with joy.
Seeing a child’s face that is sad and sad, of course it will make mothers worry if something happens to our child. For this reason, the mother will immediately hug and check what happened to her baby. This is solely done by mothers to ensure that their children are okay and feel happy without any pressure from anyone.
Now mother, what happens if there is a mother who doesn’t want her child to be happy? This of course will make anyone regret the behavior of a mother like this. However, this mother’s behavior is solely for the safety of the child and even for the sake of saving his life. For this reason, this mother tries everything she can and does everything in her power how to keep her child out of reach of people or things that can make her child happy.
Wow, you can’t imagine how it feels to live in loneliness and the prohibition of being happy, especially when this happens to children. Of course, as parents, this will make us continue to grieve and be haunted by guilt. That was also what this mother experienced. But whatever power, this mother cannot do much, the most important thing is that she will try everything for the safety of her child’s life. Even if you have to isolate your child. What’s the story like? Let’s look at the following let’s bun.
Poor Anaku who can’t be happy
Is what happened to Rebecca Dandy, a mother of a 5 year old child, who had to face the harsh reality when doctors diagnosed her child with a rare disease that did not allow her child to be too happy and laugh because this could make her child die instantly. Rebecca’s child is named Neve Dandy, even though she is 5 years old, until now Neve has never once celebrated her birthday. He also never plays with his friends or spends holidays with other family members.
Not because this child is strictly forbidden, but for the safety of his soul, like it or not his mother has to do this to him. Neve is one of the sufferers of a rare syndrome called Dravet. This syndrome can make him go into convulsions and can lose his life instantly when he feels happy or even when he laughs.
You can imagine how hard it will be when we are not allowed to feel happiness in our life. That was what Neve felt at that time, this little girl just lived in loneliness without knowing how it felt happy, how it felt to laugh and couldn’t enjoy childhood and feel like enjoying the world like her peers.
Not only was Neve troubled, the mother often felt sad and her mind screamed when she had to confront Neve in such a condition. Why not, when other parents are competing to make their children happy and showering them with happiness, Rebecca just doesn’t experience exciting things. But what can I say, like it or not, ready or not, it was the mother who had to take a role in managing Neve’s life and the safety of her soul.
Therefore, to maintain the safety of the child, Neve’s parents take great care of their daughter. They purposely kept Neve away from people and purposely never made Neve happy. Even with her sister, Neve rarely spent any time together.
The mother admitted that she often felt tense when she had to undergo routine check-ups and escorted Neve to the doctor, “Neve may look like the happiest girl you will ever meet. He always smiled and laughed (small). But that feeling will make you feel like treating a ticking time bomb, because caring for a child with this drum is really stressful, ”said the mother.
It’s only natural that Neve’s parents were often haunted by fear and tension while treating Neve, doctors had warned that laughter and feelings of happiness could send Neve into a seizure. Even this innocent girl could potentially experience sudden death if she had a seizure.
Dravet syndrome itself in medicine is known as Severe Myoclonic Epilepsy of Infancy (SMEi). This syndrome was first described by an expert named Charlotter Dravet in 1978. In the ILAE Revision the classification of epilepsy SME syndrome in infants is officially named ‘Dravet syndrome’. This syndrome is a form of epilepsy that is rarely found starting in infancy, characterized by seizures in the infant.
Neve himself had this condition since he was a baby, to be exact, doctors diagnosed him with Dravet’s syndrome when he was only 18 months old. Apart from not being allowed to laugh, Neve was also asked to maintain her food intake. It is also not allowed to experience drastic temperature changes. For this reason, her parents never took Neve away. In addition, Neve should not experience illnesses such as flu and cough as much as possible. For this reason, Neve’s parents took great care of her very painstakingly and well.
However, this still makes Rebecca, Neve’s mother feel stronger and stronger because there are so many people who give her support, even support comes from friends in the meetings that Rebecca attended, namely meetings with parents whose children also suffer from the syndrome. Dravet.
He admitted, he would never know what would happen in the future. However, finding the child greeted him every morning, as if giving strength as well as being an extraordinary thing for him.
Unfortunately for Neve, this little girl couldn’t laugh and couldn’t be happy. However, whatever power all was done to save his life. We wish him all the best in this little girl’s health and that Rebecca’s mother can be given the courage to look after and care for Neve.